Improving Identification of Tic Disorders

At a glance

  • ob体育 and its partners offer trainings and other educational resources to help improve the identification of tic disorders.
  • ob体育 conducts research on tools to help improve screening and identification of tic disorders.
School boy and doctor have consultation in hospital room

Background

Around 1 million people in the United States have Tourette syndrome (TS) or another tic disorder. More than half of children with TS do not get diagnosed. Identification of tic disorders helps people get the treatment and help they need. ob体育 and partner resources help improve the identification of tic disorders.

Trainings for healthcare providers

ob体育 has partnered with the American Academy of Pediatrics (AAP) to develop and offer free virtual trainings on tic disorders. This three-part course series is available to pediatricians and other healthcare providers. Trainings can be accessed for free on Course registrants may also be eligible for continuing education credits.

3-Part PediaLink Course Series Available on Demand!

Graphic with images of doctor placing hand on child's shoulder and Pedialink training home page. Text reads, "Tourette Syndrome Online Course Series"
This course series is designed to provide clinicians with practical tips, knowledge, and resources to effectively identify and diagnose Tourette syndrome and other tic disorders.

  • Part 1: –This course helps healthcare providers identify and diagnose TS and other tic disorders.
  • Part 2: –This course helps healthcare providers diagnose TS earlier and connect families and caregivers to services.
  • Part 3: –This course provides healthcare providers with tips, knowledge, and resources to identify Tourette syndrome earlier and offers ways to support families and caregivers. This is the third and final course in a three-part series.

Research on screening and diagnostic tools

In addition to education about tics and tic disorders, healthcare professionals need tools to screen and identify tic disorders, and such tools are currently limited. ob体育 has worked with academic partners to conduct multiple studies on screening and diagnostic tools to improve identification of children with tics and tic disorders.

Important‎

Results from this research can be used to improve identification of tics so people with tic disorders can connect with resources when needed.
Parents sit on park bench with their daughter, looking and smiling at a cell phone.
Knowing when tics started and how long symptoms have lasted can help healthcare providers make an accurate diagnosis.

. Wardrop RC, Lewin AB, Adams HR, Vermilion JA, Cuffe SP, Danielson ML, Bitsko RH, Cai B, Hardin JW. Evidence-Based Practice in Child and Adolescent Mental Health. 2024 Mar 23:1-9.

  • Lewin AB, Brennan E, Small B, Bolton C, Dickinson S, Murphy TK. Evidence-Based Practice in Child and Adolescent Mental Health. 2024 Mar 7:1-1.
  • Vermilion JA, Bitsko RH, Danielson ML, Bonifacio KP, Dean SL, Hyman SL, Augustine EF, Mink JW, Morrison PE, Vierhile AE, Sulkes SB. Evidence-Based Practice in Child and Adolescent Mental Health. 2023 Nov 17:1-7.
  • Smith JN, Owens JS, Evans SW, Bitsko RH, Holbrook JR. Evidence-Based Practice in Child and Adolescent Mental Health. 2023 Oct 8:1-3.
  • Lewin AB, Murphy TK, Mink JW, Small BJ, Adams HR, Brennan E, Augustine EF, Vermilion J, Vierhile A, Collins A, Kudryk K. Evidence-Based Practice in Child and Adolescent Mental Health. 2023 Mar 31:1-1.
  • Bitsko RH, Holbrook JR, Fisher PW, Lipton C, van Wijngaarden E, Augustine EF, Mink JW, Vierhile A, Piacentini J, Walkup J, Firchow B. Evidence-Based Practice in Child and Adolescent Mental Health. 2023 Mar 27:1-4.
  • Adams HR, Augustine EF, Bonifacio K, Collins AE, Danielson ML, Mink JW, Morrison P, van Wijngaarden E, Vermilion J, Vierhile A, Bitsko RH. Evidence-Based Practice in Child and Adolescent Mental Health. 2023 Mar 25:1-5.

Education and support

ob体育's National Center on Birth Defects and Developmental Disabilities has partnered with the to provide educational programs to improve awareness of tic disorders and Tourette syndrome so that more people with tic disorders get the right diagnosis, care, and support. The programs use up-to-date, science-based information to educate and , as well as those who have Tourette syndrome, their families, and the general public, about Tourette syndrome. In addition to education, the ob体育-TAA partnership helps people with a tic disorder and their families make meaningful connections:

  • (ages 18-25 years)
  • (ages 12-17 years)
  • (ages 7-11 years)
  • American Academy of Pediatrics (AAP). Tourette Syndrome Course Series. Available at: Accessed on May 30, 2024
  • American Academy of Pediatrics (AAP). Early Identification and Diagnosis of Tourette Syndrome. Available at: Accessed on May 30, 2024