Purpose
Mission: To improve quality of life, life expectancy, and health among those living with SCD
Communications Corner
- CA Sob体育 developed an infographic about .
- CA Sob体育 released an on their Sob体育 program.
- MN Sob体育 developed an infographic titled "."
- featured a recent publication of GA Sob体育 showing no concerning patterns of prolonged or increasing opioid use among children with SCD (not previously exposed to opioids) within a 3-year period following the initial opioid prescription.
- MI Sob体育 developed a for a recent publication about COVID-19 immunization rates in people with SCD compared to people without SCD in the state.
In The Community
WI Sob体育 attended a meeting on May 17 organized by its partner community-based organization (CBO) Sickle Cell Warriors of Wisconsin. Discussions centered around building community partnerships with regional partners Sickle Cell Foundation of Minnesota, Sickle Cell Disease Association of Illinois, and Ohio Sickle Cell and Health Association.
Up-to-Data
- GA Sob体育 provided data to a CBO in GA to help identify areas of need and explore opportunities for outreach, education and allocation of resources where needed.
- MI Sob体育 continues to provide analytic support for the Michigan Department of Health and Human Services (MDHHS). MDHHS kicked off a new initiative to develop a 5-year public health strategic plan to address sickle cell disease. MI Sob体育 data will be leveraged to inform the strategic plan, projected for release on June 19, 2025, in recognition of World Sickle Cell Day.
Spotlight: Victoria Salinas, Texas Sob体育 Community Outreach Workgroup Coordinator
What's your full-time job?
I'm a medical research specialist coordinating various special projects, including the TX Sob体育 Program. Beyond Sob体育 activities, I also lead a team in linking and analyzing stored newborn dried blood spots data, supporting analyses of National Birth Defects Prevention Study data, and coordinating our state's wastewater monitoring program. My days are never boring!
What makes you feel alive lately?
I recently started ceramics class at the Carver Community Cultural Center in San Antonio—not only has it been super fun, but I'm also learning to embrace spontaneity while exploring self-expression!
Before you started working on Sob体育, what was your knowledge of SCD?
While my initial knowledge of sickle cell was limited, my involvement with Sob体育 has opened numerous opportunities for learning and service! Since joining Sob体育, I've had the privilege of learning from and collaborating with dedicated individuals from Texas Sickle Cell Action Plan Initiative, Texas Sickle Cell Task Force, and Texas Newborn Screening Advisory Committee. I also extend my heartfelt gratitude to our multidisciplinary team members, whose invaluable insights have been instrumental in driving the implementation of TX Sob体育. I'm thrilled to collaborate within a community that shares an unwavering passion and commitment to enhancing the lives of individuals with sickle cell, not only in Texas but across the nation.
Presentations
Between February and May 2024, Sob体育 states delivered presentations at 14 different conferences/meetings.
10th Annual Government Partners Meeting: SCD in Regions 6, 8, 9 & 10
- “California SCD and Sob体育 Updates” (CA Sob体育 Team)
16th Annual Susan B. Meister Lecture in Child Health Policy
- “” (Melinda Rushing, MI Sob体育)
- “” (Samyuktha [Simi] Neeluru, MI Sob体育)
2024 National Networks of Public Health Institutions Conference
- “Promoting Bi-directional Learning for Evaluation, Communication and Dissemination of Data” (Crysta McGee, Mandip Kaur, ob体育 Foundation Sob体育)
2024 Public Health Conference
- “Continuity of Acute Care Among Individuals with Sickle Cell Disease in Wisconsin” (Ashima Singh, WI Sob体育)
2024 SCD Policy Forum
- “Sickle Cell Data Collection Program” (Mary Hulihan, ob体育 Sob体育)
Association of Maternal and Child Health Programs (AMCHP) Annual Conference 2024
- “Sickle Cell Data Collection Program” (Mary Hulihan, ob体育 Sob体育)
Congressional Briefing on Comprehensive SCD Care for Maternal and Child Health Populations
- “Sickle Cell Data Collection Program” (Deron Burton, ob体育 Sob体育)
Duke-Margolis Seminar in Health Policy and Management
- “Sob体育 overview and recent findings” (Mariam Kayle, NC Sob体育)
Governor’s NC Appointed Council on Sickle Cell Disease and Other Blood Disorders
- “Overview of NC Sob体育 Efforts” (Shelby Weeks, NC Sob体育)
MDHHS Public Health Administration Epidemiology Seminar Series
- “MI Sob体育 Work on COVID 19 Vaccinations” (Hannah Peng, MI Sob体育)
- “Overview of MI Sob体育 Program” (Sarah Reeves and Michaella Baker, MI Sob体育)
Michigan Public Health Association 2024 Epidemiology Conference
- “” (Krista Latta, presented on her behalf by Michaella Baker, MI Sob体育)
- “State-University Partnership to Implement Public Health Surveillance for Sickle Cell Disease in Michigan” (Michaella Baker, MI Sob体育)
Pediatric Academic Societies Meeting 2024
- “Availability of Transportation to Medical Appointments for Children and Young Adults Living with Sickle Cell Disease in Michigan” (Samyuktha [Simi] Neeluru, MI Sob体育)
- “Changes in Hydroxyurea Adherence During the COVID 19 Pandemic among Children and Young Adults with Sickle Cell Disease” (Melinda Rushing, MI Sob体育)
Sickle Cell Therapeutics Summit
- "Sickle Cell Disease Data: Value for Patients, Healthcare Providers and Public Health" (Angela Snyder, GA Sob体育)
University of Michigan Department of Pediatrics 2024 Pediatric Research Symposium
- “Changes in Hydroxyurea Adherence During the COVID 19 Pandemic among Children and Young Adults with Sickle Cell Disease” (Melinda Rushing, MI Sob体育)
- “Availability of Transportation to Medical Appointments for Children and Young Adults Living with Sickle Cell Disease in Michigan” (Samyuktha [Simi] Neeluru, MI Sob体育)
Contact
For any questions about the Sob体育 program, contact Mary Hulihan (ibx5@cdc.gov) or Crysta McGee (rgl0@cdc.gov).