Sob体育 Capacity Building Sessions

What to know

View a collection of resources to help programs build the foundation for a sickle cell disease (SCD) surveillance system.

5 people in a circle stacking hands on top of on another; a sign of teamwork and collaboration.

Overview

ob体育 funded and collaborated with two sickle cell data collection (Sob体育) program sites—in California and Georgia—to create the Sob体育 Capacity Building toolkit.

The toolkit is a collection of resources to help programs build the foundation for an SCD surveillance system in their state. While there may be variation across programs in resources, data source availability, and organizational processes for data linkage, the core components of a successful SCD surveillance system are the same.

The consists of three phases:

  • Phase 1: Developing multi-stakeholder collaborations
  • Phase 2: Building data infrastructure
  • Phase 3: Sharing data findings with key stakeholders

A series of capacity-building sessions/presentations were developed to provide a more in-depth look at the phases of the Guiding Framework. For more information, view slides from these presentations, linked below.

Phase 1: Develop multi-stakeholder collaborations

Phase 2: Build data infrastructure

Phase 3: Share data findings

Surveillance resources

Data linkage

National Center for Health Statistics (NCHS) Data Linkage

Data policy

HIPAA Privacy Rule and Public Health

Data use agreements

Print
Content Source:
National Center on Birth Defects and Developmental Disabilities (NCBDDD)