What to know
The National Center on Birth Defects and Developmental Disabilities’ extramural program funding (based on Fiscal Year 2024).

Activities and funding
Improving Timely Documentation, Reporting, and Analysis of Diagnostic and Intervention Data through Optimization of EHDI Surveillance Practices and Information System
Utah Department of Health (DD20-2006, 000083)
$169,000
Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults
University of Utah (DD19-1902, 000053)
No cost extension until 9/29/25
Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida
University of Utah (DD19-001, 001282- Comp C)
$24,999
The Muscular Dystrophy Surveillance, Tracking and Research Network
University of Utah (DD19-002, 001249 – Comp A)
Project ended 8/31/24
The Muscular Dystrophy Surveillance, Tracking and Research Network
University of Utah (DD19-002, 001246- Comp C)
Project ended 8/31/24
Advancing Population-Based Surveillance of Birth Defects
Utah Department of Health (DD21-2101, 000109)
$363,000
Improving the Health of People with Mobility Limitations
Utah Department of Health (DD21-2103, 000031)
$585,000
Enhancing Public Health Surveillance of Autism Spectrum Disorder through the ADDM Network
University of Utah DD23-2301, 000102)
$875,838
Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults
University of Utah (DD-24-0051, 000057)
$500,000
Surveillance of Muscular Dystrophies
University of Utah (DD-24-0064, 000050)
$450,000
Surveillance of Spina Bifida across the Lifespan
University of Utah (DD-24-0065, 000046)
$340,000
Epidemiology and Laboratory Capacity for Prevention and Control of Emerging Infectious Diseases (ELC)
Utah Department of Health and Human Services (CK-24-0002, 000376)
$313,058