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Activities and funding

Improving Timely Documentation, Reporting, and Analysis of Diagnostic and Intervention Data through Optimization of EHDI Surveillance Practices and Information Systems
North Carolina Department of Health and Human Services (DD20-2006, 000081)
No cost extension until 6/30/25

Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS) II
University of North Carolina, Chapel Hill (DD18-001, 001231)
No cost extension until 8/31/24

Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida
Duke University (DD19-001, 001278- Comp B)
$79,994

Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida
Duke University (DD19-001, 001276- Comp C)
$24,998

Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults
Duke University (DD19-1902, 000054)
No cost extension until 9/29/25

The Muscular Dystrophy Surveillance, Tracking and Research Network
Research Triangle Institute (DD19-002, 001255 – Comp A)
No cost extension until 8/31/25

The Muscular Dystrophy Surveillance, Tracking and Research Network
Research Triangle Institute (DD19-002, 001253 – Comp C)
No cost extension until 8/31/25

The Muscular Dystrophy Surveillance, Tracking and Research Network
Research Triangle Institute (DD19-002, 001254 – Comp D)
$199,999

Small Business Innovation Research Grant
Health Outcomes, Inc. (SBIR19-272, 001232)
No cost extension until 9/29/23

Study to Explore Early Development (SEED) Follow up Studies
University of North Carolina at Chapel Hill, (DD21-001, 001293)
$615,600

Advancing Population-Based Surveillance of Birth Defects
North Carolina Department of Health and Human Services (DD21-2101, 000100)
$331,000

Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS)
University of North Carolina at Chapel Hill (DD23-001, 001308)
$570,000

Sickle Cell Data Collection Program
North Carolina Department of Health of Health and Human Services (DD-23-0002, 000032)
$476,611

Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults
North Carolina Department of Health of Health and Human Services (DD-23-0002, 000032)
Duke University (DD-24-0051, 000056)
$499,456

Surveillance of Muscular Dystrophies
Research Triangle Institute (DD-24-0064, 000054)
$550,000